Hannah was born in December of 2006. Immediately after delivery a nurse checking Hannah noticed some concerning abnormalities. And four hours after she was born we were discharged & admitted to Riley Children’s Hospital where Hannah was diagnosed with ARMS, a genetic abnormality that affects the development of the GI tract and that can affect all midline organs. By the time she was 6 months old she had undergone three surgeries to correct her digestive tract (including one to place a colostomy bag), a procedure to place a feeding tube “button” to help with aspiration, and spent countless nights at Riley under observation for blood pressure and bladder related issues. By her first birthday she had completed two more (reconstructive) surgeries, and at 18 months she finally passed her swallow test and had her final procedure to remove her feeding tube “button!” We are forever indebted to the nurses, doctors, therapists and social workers at Riley. They provided exceptional care not only to Hannah, but to our entire family during a very stressful time.
Hannah is our oldest. She’s a great big sister and wonderful daughter! As a sophomore in high school she stays active in her high school as a member of multiple clubs, the Diamond Sensations Show Choir and the NPHS Early College Program. She’s also been a part of the Hancock County Children’s Choir for 5 years and was recently accepted into their two honors choirs!