Keegan was a second grader and was looking forward to a partial school day and plans with a friend to go to the zoo when I got a call from his school nurse. She told me he was having a horrible headache, and by the time I got him home, it [...]
At 14 weeks into my pregnancy, I found out that I have having monoamniotic twins. This means that I was having identical baby boys, however they were both in the same amniotic sac. This rare condition meant that there was an 85% chance that both boys would die prior to [...]
I found out I was pregnant just a couple of weeks after 9/11. My doctor set my due date as June 6, 2002. I was worried about terrorism affecting my pregnancy. Prematurity never crossed my mind. I was told that I would be on hospital bedrest for the next 15 weeks. I [...]
Reagan was two months old when her pediatrician recommended we take her to Riley because she didn't feel as though her head was shaped right. We drove up in December for Dr. Ackerman to take one look at her and say "Oh yeah, she has craniosynostosis." She put Reagan through [...]
At first, Anna’s only symptom was walking a little “wobbly,” but over the next few weeks she began to limp, especially after waking in the morning or from a nap. She never really complained, but Anna rarely complained about anything. She was a cooperative baby, always smiling and curious about [...]
Hi my name is Joseph Peters and this is my Riley story! First, me and my brother were mowing the lawn and I was riding on the deck of the mower. We went over a mole hole and my leg went in front of the mower and my leg went [...]
Cecil was born in the summer of 2013. When he was 3 months old we began noticing some breathing problems. He would wheeze a lot of the time. His pediatrician gave him some antibiotics to try, and then some others, and then a Nebulizer with several different medications, and on [...]
On May 21, 2012, at 17 months old Caleb went to his Laporte pediatrician for blood work for unexplained bruising. Later that night we got a call from Caleb's pediatrician saying go to South Bend Memorial oncology/hematology for another blood draw. That night in a conference room they told us [...]
Jon Nugent was diagnosed with a rare brain cancer as a sixth grader in March of 2009 after experiencing seizures. His treatment through Riley Hospital for Children included surgery, chemotherapy and 13 proton therapy sessions. Jon also suffered a stroke, and faced a long recovery where he relearned to walk. Since completing [...]
Lexi is a spunky, outgoing, athletic, kind-hearted little girl. She is extremely active and loves to play soccer and do gymnastics! Lexi doesn’t know a stranger, and while she may try to come off as bashful when she first meets someone new, they are sure to be her new best [...]
My name is Merideth, I'm 17 and I have POTS. POTS is short for Postural Orthostatic Tachycardia Syndrome and it's a malfunction of the autonomic nervous system in your brain, one of the leading POTS specialists in the country compares the symptoms to that of congestive heart failure. Your brain [...]
On Myrtle Beach vacation of summer 2013, I (mom) found Addison standing in the condo bedroom doing a very strange shaking spell. Her elbows were bent up and her hands/ arms were both shaking like she was trying to shake off excess water. She was also spinning in a slow, lethargic [...]
